NCS TESTIMONIALS

J. W. K., white male born in 1963.

1/30/08

Dear Dr. Amin,

Hello from the four corners area. I am doing very well-no doubt largely because of my being able to connect to you and better understand my condition. I have drafted an account of my being ill and my recovery (it still needs some work, but I feel very strongly I need to share this with others who are suffering).

Thank you very, very much for pursuing and figuring out NCS. You most certainly have made a difference in my life and others!

Forever a fan, JK.

I am a writer and a former sufferer of what has been called by many as Morgellon's Disease. Just two weeks into a new teaching job, was when the crawling sensations started.  It felt like fleas zipping across my scalp. The "bug" feeling was subtle; still I went to the school nurse and ask her to check. Under magnified light, she examined my hair and found nothing.

The crawling got worse during the next week. I tried an old fashion approach to lice and put mayonnaise in my hair for three nights in a row (with a plastic bag like a shower cap over my head to keep my pillow clean); the crawling continued. 

I went to see a doctor about my "bugs". She looked at my scalp and said, "I don't see anything, probably sheet mites." She gave me a prescription for a pesticide cream to rid myself of them.  The cream seemed to quiet the crawling. Twice I'd thought I'd gotten rid of my bugs, but they came back. The crawling expanded from my scalp to my groin and the ends of my feet.

I couldn't sleep; the "bugs" had crawled up into my nostrils and ear holes. I felt crazy with terror! Through the grace of God, I kept my cool and somehow avoided most hugs from friends at the conference. I tried my best to appear normal.    

I called my doctor's office from Denver. She decided to refer me to 3 specialists, a dermatologist, a neurologist and an allergist . The dermatologist turned out to be a class act. He didn't examine me, but felt confident for my description that I had Scabies. "There's a reason they call it the 7 years itch." He laughed from his side of the room. He gave me some awful meds that made me terribly sick. The allergist clued me in on being allergic to some grasses, trees and dogs. He didn't have the answers I was looking for. The neurologist gave me absolutely no answers. 

I ordered some natural scabies cleaner from a site on the internet. I followed the directions of spraying the solution over my entire body morning, noon, and night. My home life wasn't much better. I soaked with cleaner and laundered my sheets every night.  I got so paranoid of getting my "bugs" throughout my apartment, that I wiped down the switches, doorknobs, and plastic lawn chair (I had in the middle of my living room to sit on) at least twice each day. I put duct tape over my desk chair and my truck's seat. I walked around in plastic shoes.

I continued to look for answers on the internet. A company representative asked me to tell him the symptoms. "I'm sorry," he reluctantly responded, "We don't treat incurable diseases." "Look at our web site," he suggested. This was the first that I'd heard of Morgellon's Disease. It sounded horrible! No known cure, conditions worsening with time, eventually your skin appears as raw with colored hairs, and the likelihood of going insane; this was not something I wanted to have.

During the next week, I searched the web for Morgellon's cures and found a variety of claims. I was frustrated, sick of being tired, and running out of money.      

The weeks of having this condition turned into months. I started to drink alfalfa tea with honey every night; this had the effect of calming the night crawls. I noticed that the crawling seemed to increase at night.

I felt hopeless. None of the doctors I'd seen had any answers. What would I do? How would my life be? For some reason, I decided one morning to do a web search on "crawling sensations" instead of Morgellon's. I came across an article by Dr. Amin on Neuro-cutaneous Syndrome (NCS). It intrigued me. In the article, he mentioned dental toxicity creating the same symptoms that I was experiencing (though he never referred to it as Morgellon's Disease). I knew I had to investigate this further.

I called a biological dentist's office and mentioned the article. I asked if they could help me by recommending a means to send off a blood sample to a testing lab. They did. The dentist office had test kits and offered to give me one. I needed only to stop by. The cost was $16 to get my blood sample taken and mixed as well as $250 to get sample tested at the lab it was some cost, but I felt strongly that I needed to know. I sent the sample off.

I also followed the suggestion to call my former dentist for copies of my records. I did another web search on Dr. Amin. Miraculously, I found out that he had an office only 16 miles from where I lived. I called and scheduled an appointment.

On the morning of my appointment, I drove up towards Dr. Amin's  office with a copy of my dental records and reactivity testing report, my only companions. My mind wondered what he would be able to tell me. Maybe he's just someone out to make a buck, I thought. I tried to keep realistic and not get my hopes too high. He might help me and he might not. I sat on a couch and waited for Dr. Amin. How many others with my condition had sat here? And shouldn't his assistant and him self be concerned about getting these parasites? And just some of my wandering thoughts.

"Fill these out." Dr. Amin's assistant handed me several sheets of paper. The questions primarily related to the symptoms of the condition. Coming out of the back room, Dr. Amin sat down and introduced him self . I gave him the papers I had filled out, along with my dental records and my blood test results. He was interrupted by an overseas phone call he had to take.When he returned, he said, "you have NCS. You will get better."

He explained how the symptoms came about and connected them to dental liners explaining that some of the ingredients in liners were the same as those in nerve gas.

I asked him how he figured out the connection between the symptoms and dental toxicity. I had several cases with these symptoms. It took me four years to figure it out. I was hesitant to publish anything.

He explained the protocol for healing; it consists of two parts. First, the primary source of toxins must be removed and replaced (dental fillings, liners and adhesives). Second, the body needs to be detoxified from the poisonous substances.

Though Dr. Amin recommended only three fillings taken out per month, I had all ten of my fillings and associated under liners replaced within a two week period. I had no problem, but Dr. Amin mentioned a former patient felt like she was dying.

Dr. Amin's protocol gave a list of helpful supplements (vitamins, minerals, and antioxdants) and homeopathics given for detoxification.

A huge part of the healing for me was realizing I was not contagious. The process itself has taken quite awhile (and I will continue to detoxify for some time). After my fillings and all were removed and replaced, I still felt the crawling for some time, but it was different. I would describe the sensation as becoming numb. Instead of feeling like bugs were crawling on me, it felt similar to when your foot falls asleep (and eventually this faded too). The change in sensation assured me that I was not dealing with parasites at all.

 

C. R., white female born in California in 1964.

2004. I had my toxic dental work removed in the middle of June, 2004. In the first month following the procedure (PCI protocol), the topical (treatment) helped close and heal most of the open lesions; there is still something bulging underneath. The (treatment) helped with the new eruptions as well.

In the second month, I began to experience severe fatigue. My teeth ached. I have gained almost seven pounds, have less muscle strength; I can see pockets of swelling in my ankles, my knees. I have become very discouraged and am so tired. Some of my sores began to heal. When the sores got broken open, they bled an unusual amount.

In the third month, my energy is still low, I am feeling very foggy several times a day and experience this vision problem. It is the same as before the dental work was performed. When I get a large dose of sun, my skin improved dramatically. My right shoulder became very painful. Yoga, seems to have broken the concentration of toxins up in my shoulder and it is feeling much better. At PCI, they recommend lymph drainage massage therapy the breakouts I have are on my ankles, around the knee area, abdomen, face, head, wrist and hands. My fingernails grow like they have not for years hard and fast. I have begun to itch which was never a symptom of mine before. The teeth that were worked on are very sensitive the gums (nearby) swelled up and bled and bled. I am sleeping better and have not had night sweats for almost ten days.

9/16/04: My sores seemed to clean up, no longer remaining open. I have new ones raise up daily though, they don't always break out of the skin. I am (still) having sore lumps on my scalp, blurred vision, sensitivity to light, and severe joint pain. My capability to concentrate, remember, or even focus is so compromised that at times I think I am having dementia.

10/2/04: the Staph. infection recurred, some sores resolved, less overall sores, pin-prick and crawling sensations decreased especially in the face. Nails with pin-prick are ridgy, nails without pin-prick are smooth, and that the fatigue was worse right after the dental work.

12 01/05:  I am doing fine, but have found that it takes years to undo the havoc that toxins have created. I want you to know that I believe that God sent me to you, gave you a gift that you didn't disregard, and because you were willing, have been a turning point in my life.

12/4/05:  I am feeling good. I am just now at that point where I no longer feel the sensations in my face and chest. It is awesome.

1/5/07:  I am feeling very good, no sores, no sickness and finally no toothaches. It took a long time before I felt good enough to exercise, I eat the right foods, get through an hour jog, it has taken longer that I anticipated to feel "normal" again, but it has come. My life has been turned around since the time of dental work. My sores began healing immediately and my mouth has not peeled once since that day. My energy has returned, I did feel worse (at the beginning), but then things turned around.

7/28/07:  I am feeling better than I ever have.

8/3/07:  I am devoted to your work because I believe that had you not recognized what was going on in my system I would have died or been sent away to a mental hospital.

BS

10/25/05: I was able to get an appointment with Dr. … (Dentist).. I did get tested for dental material compatibility… I am taking Ubichinon… 3 times a day which helps tremendously… I actually replaced the antidepressant Symbiax which I was taking with it because it works a ton better and does not give me the side effects of the antidepressant. Still have Staph. and candida sp. infection (identified) from the skin test. A skin rash at times. Also. Also a white tongue at times and smelly teeth.”

3/13/06: Still having nervousness at times and problems sleeping. Up every 2 to 4 hours. I do have a rash on my left leg.

5/25/06: Some of the products in the same chemical family to avoid were Eugenol. The dentist who did the crown building on my teeth saw Eugenol in tooth #20. He removed it and it made a tremendous difference to improvement in my health. I have been waiting for a relapse but it has not come… back pain is gone. Nervousness reduced dramatically. Sleep apnea going away. Constipation disappearing. Able to dream for the first time in years. Reduced allergy reactions. White tongue almost gone. I unfortunately did not see Eugenol as being incompatible on my…dental testing report and will need to call them to ask why? I do recall it coming up as something my body does not like on a MSA test (Meridian Stress Test machine) by a local naturopath 2 years ago…the naturopath thought my problem was mercury…and I went out and had most of silver fillings redone without knowing what to replace them with and how to replace them (that got me into more trouble). I probably had Eugenol and other incompatible stuff put in the teeth as replacement.

8/14/07: Scalp sores are all but gone. I have been rather conservative in following rehab program. Removing materials and teeth as I experienced problems. I took out the sheet that you had compiled for me with the teeth and the problematic materials. It was interesting that they match exactly. I have removed some of the problematic teeth and improved when I do so. The current problems…outlined by my dentist match the same teeth you had specified. It was neat to see this and show others. I wonder if these allergic/toxic materials are responsible for the holes in my jawbone that the oral surgeon found recently? Nico/cavitations?

This testimonial is from “Recovering from Morgellons and Neuro-cutaneous Syndrome (NCS): Patients’ Perspective” By Omar M. Amin, B. Sc., M. Sc., Ph.D., USA; published in Explore Vol 18, #6, 2009.  (see publications)

MS

2006. It occurred to me that you may want a current photo devoid of rashes, sores, broken or inflamed. Sort of a “before” and “after” for your files…The area just behind both ears is still very sensitive in that it will become very red, somewhat raised and itchy at times. I have recently found out that I can not wear earrings that have surgical steel titanium, even though they may be gold plated. My ear lobes become very red and hot and itch so intensely that I cannot get them out fast enough. This was never the case before 3/22/06. This intense reactivity to titanium earrings supports the above suggestion that it was titanium dioxide in the Esthet-X that may have set off the NCS symptoms in the first place.

July, 2007: Feeling fantastic.

8/11/07: Your diagnosis and NCS protocol has helped me regain a state of wellness in a relatively short time. I continue to improve and believe that diligence to this protocol will ensure that I never experience such an impaired, debilitating lack of good health in the future. My husband says I am walking “poster chills” for the benefits strict adherence to the protocol you have developed. Sincerely and gratefully.

This testimonial is from “Recovering from Morgellons and Neuro-cutaneous Syndrome (NCS): Patients’ Perspective” By Omar M. Amin, B. Sc., M. Sc., Ph.D., USA; published in Explore Vol 18, #6, 2009.  (see publications)

OD

  
1/9/07. In February of 2006 I was in a car wreck and home recuperating. About a month and a half into my recuperation, I started having very odd neurological symptoms. I had little red bumps like bug bites on my neck and legs, itching around my face and scalp, as well as pin-prick sensations in my ankles, legs and in the thinner parts of my skin all over my body. It felt like something was physically crawling underneath my skin. Since my land lord had just finished doing a lot of construction in my apartment that opened up walls in an old building, I thought that I might have been infested with some type of mite or parasite. I looked for answers with my general practitioner and at UCLA with the dermatology department, but to no avail. No one could figure out what was causing these very overwhelming symptoms. I say overwhelming because it was so intense that I had to take several different types of medicine just to get some sleep at night. My GP told me “I have many patients with these similar symptoms and I just don’t know what to do for them. All I can do is medicate them so that they can get through the day.” I got no help from UCLA and since there was nothing in the medical books taught about these particular symptoms, they even insinuated that I was delusional (in my research, I discovered this same diagnosis has been given to countless people with similar symptoms). I knew that I was NOT delusional and went about searching on the internet for answers. I typed into Google my symptoms and came up with Neuro-cutaneous Syndrome (www.parasitetesting.com). This led me to Dr. Omar Amin. Since the early 1980’s I have had a lot of dental work done with materials containing metals and composite materials. The majority has been done in the last few years. I realize now that for many years my immune system was probably being compromised by this (I was frequently getting colds and flu’s) and the car wreck was the catalyst for these symptoms to appear (as my immune system was already overloaded). After speaking with Dr. Amin, I followed his advice and had my blood tested in Colorado. The results came back that I was highly reactive to about 50% of the dental materials in my mouth. Since this is a new frontier in health sciences there are different schools of thought on removal and restoration of dental materials. I chose to contact a dentist that follows the Huggins protocol and had all of the old dental materials removed and replaced with materials that I had researched and that had come back as low reactive on my blood test. Almost immediately all of the neurological symptoms went away and my health was totally restored. I take this as a serious gift.
We are all built differently and react differently to different foreign substances put in our bodies (or close to the gums). It is critical that people become aware of the impact that dental materials can possibly have on their health. If I had not found out about Dr. Amin, I do not want to even think about what my life might be like today.
 
This testimonial is from “Recovering from Morgellons and Neuro-cutaneous Syndrome (NCS): Patients’ Perspective” By Omar M. Amin, B. Sc., M. Sc., Ph.D., USA; published in Explore Vol 18, #6, 2009.  (see publications)

AG

TESTIMONY


I  met Dr. Amin on June 15th 2010 and can honestly say he changed my life. I suffered terribly with pain, sensations and fibrous filaments that coming through my skin. I can honestly say it was an outer world experience. It was Dr. Amin who was able to determine that I had been infected with a kind of fungus after I had gone to numerous doctors and hospitals for help. He put me on a protocol that reduced my symptoms and eventually lowered the level of toxins in my system. I can not say enough how thankful I am for his help. He is compassionate, patient and acknowledged my concerns. 



Sincerely,


AG

Elizabeth

Thank you and dr. Amin for all the good work.

4 years ago my dentist spilled an adhesive in my mouth. In a couple of weeks after I developed Morgellons symptons. I did not know about Morgellons then. It took me three years to find out. Since the symptones began I told many doctors what had happened at the dentist, but every single one of them thought I was a nutcase and left me without help. I visited a prof. of material science ( polymers) and this man told me a bunch of lies. According to him I convinced my self that the adhesive caused my troubles. In march 2011 I came across PCI's website and nearly fall of my seat when I read dr. Amin's publications. I cried for days....I was right all the time. Believe me, they are trying to cover this up. I want to start a lawsuit against the dentist but scientist are making it impossible for me. It is unbelieveble how they treat us. It,s unhuman.

I've been forced into mental health care  but I showed them dr. Amin's publications and did not hear from them anymore for weeks now. How odd is that......

Keep up the good work. I'm looking forward to this interview with dr. Amin

 With Kindness,

 Elizabeth/ the Netherlands.

Larry

 

Pam, I wanted to let you know that I have listened to yours and Dr. Amins’ podcast twice today! Once on my own and then again when Doug got home from work. I can’t begin to express my excitement and escalated sense of hope after listening to the podcast and checking out Dr. Amin’s website. He is obviously very educated and knowledgeable on Morgellons and what is necessary to eradicate it from our bodies. I nearly fell out of my chair when the woman from Canada (Dental Assistant) asked about returning to work and her concerns with regard to being contagious and Dr. Amin’s encouraging response!

I immediately went to the PCI website and began to register only to discover that I had already registered for this site almost two years ago! I can’t tell  you how many times I have found myself back at a site I have visited before. Not as a result of following links but after going through the motions of actual research and gathering information to follow up on later. I had received an email discussing dental materials such as silver fillings and amalgams causing serious health problems but did not connect the dots with regard to this and Morgellons at the time. Not sure how you found Dr. Amin but what an awesome find or at least he seems to be the “genuine article”. Can it really be true that we actually have the answer to getting rid of this nightmare?

 

I still cannot get over how he so logically and informatively discussed his research findings with regard to the dynamics of Morgellons. It all makes perfect sense and put to rest, in my opinion, so many of the scary and seemingly hopeless opinions of others. I am finding it incredible that we hadn’t  somehow crossed paths with this information until now considering the length of time he has been researching the subject and seeing/treating patients. The fact that I was that close to finding answers and very likely the cure for this terrible mess makes me a little sad but not enough to dampen my excitement and joy that were able to discover him. I really do believe Dr. Amin IS THE REAL DEAL…yah!

JL

Hi Scott... Thanks so much for sending the swab results. You could not have had better timing, actually. I went to an awesome holistic dentist this week in Marble Falls, Texas (close to Austin) who actually had a compatibility problem of his own years ago. Upon a diagnosis of Lou Gehrig's, he traveled to Montreal to see a fellow dentist friend of his, Dr. Huggins, where he found his issues were purely due to dental toxicity. I was lucky to have found these guys through the BioComp lab web site where they provide a list of dentists that they have worked with in the past. Dr Nunnely and Freedman are familiar with NCS and the right kind of holistic treatment involved and offer lymphatic drainage accupressure, vitamin C IV's as a part of treatment, etc. Here's their website if youde like to check them out or should you have patients from Texas in the future .. http://www.dentalrevision.com/. And if you have a few minutes, their first video on the video link is really what made us realize that they were incredible dentists.

Anywho, I received my biocomp report, and on my Wednesday consultation appt we determined all of my fillings/bonding need to be replaced and a surgical extraction of my root canal molar was necessary. Talk about timing, my root canal tooth started throbbing that morning when I woke up and although this infection has been going on for 4 years, these past couple days it has severely escalated and the gum tissue surrounding my molar has blistered  and graying. Without having visited you all, I would have never known the correlation nor impact that dental work such as root canals could have on ones overall health. And, thank God you were able to send me the lab report and recommended AB's just in the nick of time for me to fill the right kind of antibiotic for this crazy staph infection. I have been suspicious of the severity of my MRSA situation for quite some time... and being said, you guys have quite possibly saved my life (and my sanity) in more ways than one.... For this, I truly want to thank you all from the bottom of my heart!

I am scheduled to have the tooth removed tomorrow and some materials replaced so we're making a late night road trip to Austin right now.

As for the protocol, things have been going quite well and I'm very happy. I've expected the typical mass exodus & accompanied symptoms - which have actually been very manageable thus far. The Optique 1 eyedrops have been working out great. My big jump was stopping the Hydroxychloroquine but unlike the only other time I quit taking it, things are working in much better form and fashion and I'm not feeling the massive recoil with your protocol in place.

I do have one quick question regarding my compatibility testing. It says that I am allergic to zinc and zinc acetate, but not zinc oxide. Since the vitamin portion of the protocol includes zinc, is there a specific type I should buy? (I recently bought a zinc: arginate, glycinate, and histidinate blend.) Also, copper is another popular ingredient, another metal which I'm highly reactive to. I could just use some clarification on the metals portion to know what is good for me and what to stay away from.

That's it for now. I will keep you posted. Hope all is well in beautiful Scottsdale! Thanks again for the follow up!

All the best,
Jen

BL

5/23/06. I was recently diagnosed with Neuro-cutaneous Syndrome. I went to many doctors and many hospitals/clinics and no one knew what I had. I finally went to the Parasitologytesting.com site and thinking that I might have parasites and was searching for appropriate testing sites. I found out that ordinary labs at hospitals and private, do not take the necessary time to do the appropriate diagnostic testing, yet they report negative results and you have to pay for inappropriate and inconclusive results…and get looked upon like a hypochondriac. There are only two sites in the U.S. that do the long and intense testing…the Parasitiology Center in Scottsdale, Arizona and one other in the mid-west.

Anyway, when on the site, I noticed some information about Neuro-cutaneous Syndrome (NCS) . When I read it, I actually cried as it exactly described my symptoms and the pictures of the patients and all they had been through with other physicians…misdiagnosing and giving a variety of medications that sometimes were very harmful…was all there…it was MY STORY, in effect.

I had waited FIVE HORRIBLE YEARS, BORROWED MONEY TO GO TO THE DOCTORS, and SPENT EVERY LAST CENT I HAD TO FIND OUT WHY. My skin itched and crawled, I gained 120lbs in less than a year, when I had been 125lbs all my life, why my bra size went from 34B to 44D in less than a year, why my skin looked as if I had leprosy, with sores everywhere, why I was loosing my memory, was foggy-minded and so fatigued that it took every last ounce of energy to get up and go to the bathroom, keep, when I was such a passive person all my life, did I became angry at everyone, why I ached from head to toe right to the bone, why I started having tremors (like Parkinson’s) and had to walk with a cane, why I had constant ringing in my ears and my vision was failing and more when I was only 49 when this started and almost 56 when I found out what I had.

I was treated literally by doctors like other patients, people I met who were shocked by my looks, my family and friends, who wouldn’t even come to my door to see me for five years because they thought I was contagious. I was literally ostracized by the world (never going anywhere except to a doctor’s appointment) and only with the help of a young woman in my development who ran all my errands, purchased my food and prayed with me, and two friends who lent me money; my family didn’t even offer! I prayed, I cried, and even I thought I was going to die. I flew out to Scottsdale, where I met Dr. Amin. He actually sees patients. It all turned out to be a specific form of amalgam and mercury poisoning from the mercury and amalgams utilized in my fillings. Evidently, due to a car accident in 1999, my jaw was thrown off center and my teeth were hitting at an angle, thus causing my teeth to crack below the gum line. The toxic vapors leaked into my system, already suppressed due to chronic pain from injuries caused by the accident. The toxins went into my blood stream, then into my lymphatic system and caused my weight gain. In this instance, these toxins then went into my storage organs and then out my skin.

When I met Dr. Amin at the Parasitology Center two months ago today, I was actually near death. I was diagnosed with not just a classic case of Neuro-cutaneous Syndrome, but with a SEVERE CASE! I must now go through a detoxification program and have lymph drainage massage to take the toxins out of my tissues, have all the amalgams and mercury taken out of my mouth and hopefully, within a year, I may be better. I am indebted to Dr. Amin for his study and the efforts made to help people who have health issues. (Dr. Amin who took an interest in something that he realized was an issue that he was running into while dealing with his parasite testing), and who treated me with the utmost kindness, unlike the doctors who wouldn’t come near me or thought I was a nut case.

This testimonial is from "Recovering from Morgellons and Neuro-cutaneous Syndrome (NCS): Patients' Perspective" By Omar M. Amin, B. Sc., M. Sc., Ph.D., USA; published in Explore Vol 18, #6, 2009.  (see publications)

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